On January 6, 2016, members of the Privacy Tools for Sharing Research Data project submitted comments in response to the September 2015 notice of proposed rulemaking to revise the Federal Policy for the Protection of Human Subjects. This proposed rulemaking is the most significant attempt to overhaul the federal regulations governing the conduct of clinical research involving human subjects since the regulations, known as the Common Rule, were promulgated in 1991.
In this report, which was published in PLOS Medicine, the authors examine the questions around access to genomic data. They argue that the real breakthrough in reconciling privacy and openness in genomics requires confronting head-on some fundamentally normative tensions that are escalated in the era of genomics and big data, and they suggest three points that will play a crucial role in navigating between privacy and openness.
with California Supreme Court Justice Mariano-Florentino Cuéllar
with Dr. Nettrice Gaskins, STEAM Lab Director at Boston Arts Academy
Internet Monitor, a project of the Berkman Center for Internet & Society at Harvard University, is delighted to announce the publication of “Openness and Restraint: Structure, Discourse, and Contention in Saudi Twitter,” the eighth in a series of special reports that focus on key events and new developments in Internet freedom.
with Urs Gasser, Sandra Cortesi, Dalia Topelson Ritvo, Paulina Haduong, and Leah Plunkett
Digital Asia Hub will provide open, collaborative platform for research, knowledge sharing, and capacity building related to Internet and society issues in the region.
with Robin Chase
What happens when technology becomes a central part of a criminal trial? That's what happened with the trial of the founder Silk Road, and is happening more often. And that's why we need guides, like journalist and lawyer Sarah Jeong.